23 signs you grew up with ehlers danlos syndrome

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Ehlers-Danlos syndrome EDS is a group of genetic disorders that affect the connective tissues. Connective tissues are proteins, such as collagen, that provide elasticity and support to the joints, blood vessels, and skin. Most children with EDS have hypermobile joints that are prone to full or partial dislocation. However, there are several causes of hypermobility, and many children with hypermobile joints do not have EDS. Many children with EDS also have soft, fragile skin and bruise easily.

23 signs you grew up with ehlers danlos syndrome

Connective tissues are made up of proteins and other substances that provide them with elasticity. In people with Ehler-Danlos syndrome, the strength of collagen is affected. Though people with Ehler-Danlos syndrome are born with the condition, it may take years before it gets diagnosed. Ehler-Danlos syndrome is a genetic condition. Over 20 genes have been found to be associated with EDS. Changes variants in these genes may disrupt the production or processing of collagen, resulting in weak bones, skin , or other parts of the body. While for some, it may be related to an underlying medical condition, these may be signs of Ehler-Danlos syndrome for a few people. There is no cure for Ehler-Danlos syndrome. A few ways to manage Ehler-Danlos syndrome are:. People with Ehler-Danlos syndrome have fragile blood vessels. So, doctors may want to lower their blood pressure with medications. People with EDS usually have many healthcare professionals supporting their journey with the disease.

These types may also be diagnosed prenatally. Ehlers-Danlos syndrome EDS is a group of genetic disorders that affect the connective tissues. Morrow ES Jr.

Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn't strong enough to hold them. A more severe form of the disorder, called vascular Ehlers-Danlos syndrome, can cause the walls of your blood vessels, intestines or uterus to rupture.

Although Ehlers-Danlos syndrome EDS is a condition you are born with, it may take many years or decades before you are diagnosed. There are 13 subtypes of Ehlers-Danlos syndrome, though the hypermobile subtype is the most common. Your symptoms will depend on your subtype , but most people with EDS experience overly flexible joints, regular partial or full joint dislocations while doing everyday activities, stretchy or fragile skin, easy bruising, and chronic pain. We asked our Mighty community to share signs that they grew up with Ehlers-Danlos syndrome , which they can now recognize in retrospect. Perhaps some of these will sound familiar to you, too. If you were the kid who could always ace that flexibility test during gym class, it may have been one of the early indicators you have EDS. Being more flexible than average — sometimes way more flexible — is one of the most common symptoms of the condition. Atwal said.

23 signs you grew up with ehlers danlos syndrome

Connective tissues are made up of proteins and other substances that provide them with elasticity. In people with Ehler-Danlos syndrome, the strength of collagen is affected. Though people with Ehler-Danlos syndrome are born with the condition, it may take years before it gets diagnosed. Ehler-Danlos syndrome is a genetic condition. Over 20 genes have been found to be associated with EDS. Changes variants in these genes may disrupt the production or processing of collagen, resulting in weak bones, skin , or other parts of the body. While for some, it may be related to an underlying medical condition, these may be signs of Ehler-Danlos syndrome for a few people.

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Easy to understand without a scientific background. Ehlers-Danlos syndrome care at Mayo Clinic. Overall, it was a really great experience and I look forward to ordering more of the reports. Orthostatic Intolerance : Individuals with EDS may experience dizziness and lightheadedness upon standing. Scoliosis : Abnormal curvature of the spine is more prevalent in individuals with EDS. Physical therapy: Joints with weak connective tissue in Enhler Danlos increases the risk for dislocations. Financial Assistance Documents — Minnesota. Conclusion Growing up with Ehlers Danlos Syndrome can present a range of challenges, from chronic pain and joint instability to skin fragility and delayed wound healing. If you suspect that you may have grown up with EDS, it's important to understand the signs and seek appropriate support. The Benderson Family Heart Center treats the full spectrum of heart disorders, including the rarest and most complex congenital heart defects.

For the Ehlers-Danlos syndrome EDS guide, we interviewed three medical experts, read numerous studies and surveyed more than people living with EDS. The guides are living documents and will be updated with new information as it becomes available.

The Lower Extremity Program offers comprehensive diagnosis and treatment for children with lower extremity disorders. There is no cure for Ehler-Danlos syndrome. But it's also important not to be overprotective and avoid living an otherwise normal life. People with cEDS may have: joint hypermobility loose, unstable joints that dislocate easily stretchy skin fragile skin that can split easily, especially over the forehead, knees, shins and elbows smooth, velvety skin that bruises easily wounds that are slow to heal and leave wide scars hernias and organ prolapse Vascular EDS Vascular EDS vEDS is a rare type of EDS and is often considered to be the most serious. Always consult with a qualified healthcare provider for an accurate diagnosis and personalized treatment plan. In people with Ehler-Danlos syndrome, the strength of collagen is affected. Make your tax-deductible gift and be a part of the cutting-edge research and care that's changing medicine. The inclusion of such does not indicate an endorsement or approval of the products or services linked. Most children with EDS have hypermobile joints that are prone to full or partial dislocation. Any actions or decisions taken based on this information are the sole responsibility of the user.